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INresearch.org Privacy Statement

Applicability

This privacy notice applies only to the Indiana CTSI (www.INresearch.org) and explains our practices concerning the collection, use, and disclosure of visitor information. Visitor information collected by Indiana CTSI will be used only as outlined in this privacy notice.

Other units at the university may collect and use visitor information in different ways. Therefore, visitors to other university web sites should review the privacy notices for the particular sites they visit. Indiana CTSI is not responsible for the content of other web sites or for the privacy practices of web sites outside the scope of this notice.

Changes

Because Internet technologies continue to evolve rapidly, Indiana CTSI may make appropriate changes to this notice in the future. Any such changes will be consistent with our commitment to respecting visitor privacy, and will be clearly posted in a revised privacy notice.

Collection and Use

Passive/Automatic Collection

When you view pages on our site, the web server automatically collects certain technical information from your computer and about your connection including:

  • your IP address
  • the domain name from which you visit our site
  • user-specific information on which pages are visited
  • aggregate information on pages visited
  • the referring web site
  • the date and time of visit
  • the duration of visit
  • your browser type
  • your screen resolution

Continued use of our web site indicates consent to the collection, use, and disclosure of this information as described in this notice. The Indiana CTSI will not sell, lease or rent any of your information to others.

Some technical information is retained in aggregate for a reasonable amount of time, not to exceed one (1) year.

This information is:

  • used by us to evaluate our geographic reach
  • not shared with other organizations for commercial purposes
  • disclosed when legally required to do so, at the request of governmental authorities conducting an investigation, to verify or enforce compliance with the policies governing our web site and applicable laws, or to protect against misuse or unauthorized use of our web site
  • other Indiana University units/departments/schools and partnering affiliations

We may provide this information to:

  • to a successor entity in connection with a corporate merger, consolidation, sale of assets, or other corporate change respecting the web site

Except as provided in the Disclosure of Information section below, we do not attempt to use the technical information discussed in this section to identify individual visitors.

Active/Manual/Voluntary Collection

Other than automatically collected technical information about your visit (described above, or cookies described below), we may ask you to provide information voluntarily, such as through forms or other manual input. This information is generally retained as long as you continue to maintain a relationship with us. Providing this information is wholly voluntary. However, not providing the requested information (or subsequently asking that the data be removed) may affect our ability match you with. Providing the requested information indicates your consent to the collection, use, and disclosure of this information as described in this notice. Information we will actively collect will include:

  • the email addresses of those who communicate with us via email
  • name and address
  • telephone number
  • information volunteered by the visitor, such as preferences, survey information and/or site registrations
  • health information
  • study interests

This information will only be used to link you with an Indiana University or partnering institution’s researcher who is running a study that you are eligible for. The personally-identifiable information we will need to make available to our researcher will be:

  • your name
  • your email address
  • other contact information, such as address or telephone number
  • your health information

Cookies

A cookie is a small data file that is written to your hard drive that contains information about your visit to a web page. If you prefer not to receive cookies, you may configure your browser to not accept them at all, or to notify and require approval before accepting new cookies. Some web pages/sites may not function properly if the cookies are turned off, or you may have to provide the same information each time you visit those pages.

In order to customize the information and services offered to you, our site uses cookies to:

  • record session information, such as entering or making changes to information in your accounts
  • record user-specific information on what pages users access or visit
  • alert visitors to new areas that we think might be of interest to them when they return to our site
  • customize web page content on visitors' browser type or other information that the visitor sends

Children

This site is not directed to children less than 18 years of age, and does not sell products or services intended for purchase by children. Any information that is included about children under the age of 18 needs to be provided by a parent or a guardian. We encourage parents and teachers to be involved in children's Internet explorations. It is particularly important for parents to guide their children when they are asked to provide personal information online.

Use of Third Party Services

Our web site does not utilize any types of services provided by third parties.

Updating Inaccurate Information

In some cases, we will grant visitors the ability to update or correct inaccuracies in the information that we maintain.

Visitors may correct inaccuracies in:

  • all information [including proprietary information] that we maintain
  • unique identifier information (e.g., password) that we maintain
  • communications that the visitor has directed to our site (e.g., emails, visitor inquiries)

Disclosure of Information

Other than sharing your information with other appropriate university personnel and units to ensure the quality, functionality, and security of our web site, or manage your relationship with us, we will not disclose personally identifiable information about your use of the site except under the following circumstances:

  • to provide information to a researcher who may contact you for a study
  • With your prior written (including email) consent
  • When we have given you clear notice that we will disclose information that you voluntarily provide
  • With appropriate external parties, such as law enforcement agencies, in order to investigate and respond to suspected violations of law or University policy. Any such disclosures shall comply with all applicable laws and university policies.

It is important to remember that any information that you have authorized to be released to researchers is no longer under the control of the Indiana CTSI.

Research studies may be done on the Indiana CTSI registry. During these studies, it will not be possible to identify the volunteers included. Any study findings will be used to improve the usability of the website for the volunteers.

Security

Due to the rapidly evolving nature of information technologies, no transmission of data over the Internet can be guaranteed to be completely secure. While we are committed to protecting the privacy of our visitors, we cannot guarantee the security of any information that you transmit to University web sites, and you do so at your own risk. However, once we receive your information, we will use reasonable safeguards consistent with prevailing industry standards and commensurate with the sensitivity of the data being stored to maintain the security of that information on our systems.

In addition, we will comply with all applicable Federal, State and local laws regarding the privacy and security of visitor information.

We have appropriate security measures in place in our physical facilities to protect against the loss, misuse, or alteration of information that we have collected from you at our site.

Privacy Notice Changes

From time to time, we may use visitor information for new, unanticipated uses not previously disclosed in our privacy notice.

  • We will post the policy changes to our Website to notify you of these changes and provide you with the ability to opt out of these new uses. If you are concerned about how your information is used, you should check back at our Website periodically.

Contact Information

INresearch.org as a recruitment tool is overseen by the Indiana University (IU) Institutional Review Board (IRB). If you have any questions or concerns regarding this registry please contact Patrick McGuire at contactus at INresearch.org  or the IU Human Subjects Office at (317) 278-3458 or (800) 696-2949.